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In this issue Matariki · Ask Avril · SCAN 2025 results · Forbidden Pharmacy · three events
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Matariki 2026
A time to reflect, and to give thanks
Kia ora,
Matariki rises this Friday – the Māori new year, and a time to reflect, give thanks, and look to the future. In that spirit, some heartfelt thanks.
To Jatin Patel of JP & Associates and the textile-recycling firm after, whose sponsorship has once again made our Patient Education Day on 28 August possible. See the work after is doing.
And to John and Briar Shutt, who gave in memory of their daughter Lisa toward our nursing support, and to the late Michelle Staff, whose bequest will help build our library of patient resources. Gifts like these keep our support free for everyone who needs it. We send love and light to both families this Matariki.
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Ngā mihi,
Dr Michelle Sullivan
Chief Executive
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Ask Avril · nurse support
Newly diagnosed, or just have a question before your next appointment? Our specialist NET nurse Avril is here to help – it's free and personal, and no question is too small.
Ask Avril
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With thanks to our sponsor
Jatin Patel and the team at after (JP & Associates), whose support makes our Patient Education Day possible.
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What our patients told us
SCAN 2025: a New Zealand reading
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New Zealanders with NETs rarely pay for their care, and access to treatments like PRRT is now among the best in the world. But they still wait longer, and remain largely cut off from the trials and newer medicines others reach. 110 patients and 73 clinicians told us where we lead – and where we still fall short.
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91%
say PRRT is provided free here – against 40% globally.
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3.6
quality-of-care score – level with the global average.
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Where we lead
50% saw a NET nurse specialist (28% globally). Care is nurse-led, and it's free.
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Where we're behind
59% report treatment delays (33% globally); only 37% have heard of NET trials (57% globally).
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| Rx · Not funded in New Zealand |
So we built a pharmacy no one can shop at.
SCAN 2025 confirmed it: New Zealanders with NETs are behind on the newest medicines. Alongside 16 other health charities, we've filled every shelf with treatments Kiwis can't access – to show the next government exactly what's out of reach. 2026 is an election year, so now is the moment. Come. Share. Take a stand.
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SATURDAY 25 JULY · 10AM–5PM
Shed 10, 89 Quay Street, Auckland CBD
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Coming up
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Zoom · Tue 21 July, 6pm
Dr John Mak on neuroendocrine carcinomas
This month's education Zoom looks at NECs – aggressive, fast-growing cancers that behave quite differently from the NETs we usually focus on.
Register for the Zoom
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Community · Fri 24 July, 11am
Auckland coffee catch-up
Join us at Tupu'anga Café, Mt Eden. We'll have a quiet space held for our group – come for a warm cuppa and good company. If you're not sure where to go, just ask at the counter.
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Save your seat
Patient Education Day is back in Auckland
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Friday 28 August 2026
9.30am – 4.00pm · Jubilee Hall, Parnell |
Free on-site parking, close to the hospital, full AV, and a confirmed line-up of experts. Free for patients and whānau. Newly diagnosed? This day is especially for you.
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Save the dates · August
| Mon 10 August, 1pm · Rebecca Osborne – overcoming anxiety |
| Wed 19 August · Helen Brown – NETs and nutrition (time TBC) |
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Questions, a comment, or just want to say hello? We're an email away and the right person will get back to you. For anything urgent, please contact your own doctor. Contact us.
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We're 100% donation powered.
Every gift keeps our nurse support, education and advocacy free for the whole community.
Website ·
Contact ·
Facebook
Neuroendocrine Cancer New Zealand · Registered charity CC49802.
PO Box 87064, Meadowbank, Auckland.
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