Aotearoa’s NET community
You are not alone with NETs.
Free patient information, peer support and advocacy for New Zealanders affected by neuroendocrine cancer. Built by patients, for patients.
New report
SCAN 2025: how New Zealand’s NET care compares with the world.
New Zealanders rarely pay for their care, and PRRT access is now among the best anywhere – but patients still wait longer and hear far less about clinical trials. 110 patients and 73 clinicians told us where we lead, and where we fall short.
How we help
Three pillars, every day, for the NET community.
We provide patient information, peer support and advocacy in Aotearoa New Zealand. All free. All grounded in lived experience.
Patient information
Plain-language guides, symptom toolkits and clinical PDFs written for newly diagnosed Kiwis and their whānau.
Browse the Knowledge HubPeer support
Connect with people who get it – patients, families and bereaved relatives – through Zoom catch-ups and one-to-one calls.
How we support youAdvocacy
We work with Pharmac, Te Whatu Ora and clinicians to improve diagnosis and access to treatment for NET patients.
How to get involvedWhat’s on
Coming up for the NET community.
FeaturedUnlock the Forbidden Pharmacy
A pharmacy no one can shop at. Alongside 16 other health charities, we've filled the shelves with treatments Kiwis can't access – to show the next government what's out of reach.
FeaturedPatient Education Day 2026
Our Patient Education Day is back in Auckland. Free for patients and whānau, with a confirmed line-up of experts. Newly diagnosed? This day is especially for you.
Dr John Mak on neuroendocrine carcinomas
July's education Zoom looks at NECs – aggressive, fast-growing cancers that behave quite differently from the NETs we usually focus on.
Patient stories
Real Kiwis. Real journeys. Shared so you don’t feel alone.
Patient stories
Multiple Endocrine Neoplasia Type
NECNZ founder and former CEO shares her NETs story
Read story →
Patient stories
15 years since diagnosis - Dave's NET Story (part 2)
Dave's NET story, part 2 – reflections fifteen years on from diagnosis, on living well with neuroendocrine cancer.
Read story →
Patient stories
Adenocarcinoma with unknown primary - Dave's NET story (part 1)
Dave's NET story, part 1 – how a diagnosis of adenocarcinoma with unknown primary led him to a neuroendocrine tumour answer.
Read story →What your support makes possible
- 8
- Kiwis diagnosed with neuroendocrine cancer every week
- 350+
- New Zealanders with NETs we connect with each year
- Free
- Peer support and patient information, always
Stay connected
Monthly updates from the NET community.
Patient stories, new resources, advocacy wins and what’s happening across Aotearoa.
Read past issuesWe don’t receive government funding.
Every gift keeps the patient-support work going. NECNZ is a registered charity (CC49802) – donations over $5 are eligible for a 33⅓% tax credit.