Information you can trust.

Chris's NET journey

Chris's NET cancer experience has created more upsides to his life than downsides. This is his story.

John's story

John shares his experience of living with neuroendocrine cancer.

The twelve steps to my front door – Lou's NET story

Lou was tramping New Zealand's toughest Great Walks in March. By April, twelve steps to her front door were a struggle. A 15 cm pancreatic NET, a second tumour on her kidney, and the symptoms she had spent years putting down to menopause.

Multiple Endocrine Neoplasia Type 1

NECNZ founder and former CEO shares her NETs story

15 years since diagnosis - Dave's NET Story (part 2)

Dave's NET story, part 2 – reflections fifteen years on from diagnosis, on living well with neuroendocrine cancer.

Adenocarcinoma with unknown primary - Dave's NET story (part 1)

Dave's NET story, part 1 – how a diagnosis of adenocarcinoma with unknown primary led him to a neuroendocrine tumour answer.

What's in a Date? Bryan's NET story

Bryan documents his NETs journey from an unexpected diagnosis

Karen's NET Story

Small intestinal NETs in the family - Jenny's NET story

Jenny's story – small intestinal NETs running in her family, and the path to genetic testing and ongoing care.

Malignant carcinoid tumour - Lynette's NET story

Lynette shares her experience of a malignant carcinoid tumour – diagnosis, treatment, and life beyond it.

Honouring Dr Malcolm Legget

Pancreatic NETs - Chris's NET

Chris's NET cancer experience has created more upsides to his life than downsides

Merkel Cell Carcinoma - Peter's

Peter self-funded a treatment that we're now campaigning for

Pulmonary neuroendocrine carcinoma - Suzanne's story

Suzanne shares her experience of pulmonary neuroendocrine carcinoma – diagnosis, treatment, and what she would tell anyone newly diagnosed.

Pancreatic NET with liver secondaries - Malcolm's NET story

Malcolm's story – living with a pancreatic neuroendocrine tumour and liver secondaries, told in his own words.