Knowledge Hub
Information you can trust.
Free, evidence-based resources for patients, families and health professionals navigating neuroendocrine cancer in Aotearoa New Zealand. Written in plain language, reviewed by clinicians.
102 resources
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Understanding NET cancer1 Jul 2026SCAN 2025 – NET patient survey (New Zealand)
The New Zealand reading of the global SCAN 2025 survey of neuroendocrine cancer patients and clinicians – how our care compares with the world.
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News1 Jul 2026SCAN 2025: New Zealand leads on access, but patients still wait
New Zealanders with NETs rarely pay for treatment and have world-leading access to PRRT – but 59% report delays, and only 37% have heard of clinical trials. The SCAN 2025 findings, in full.
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VideoPatient storiesChris's NET journey
Chris's NET cancer experience has created more upsides to his life than downsides. This is his story.
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Resources for HCPsGP Education
Earn RNZCGP CPD points – a free RNZCGP-endorsed online course on identifying and managing neuroendocrine cancer in general practice.
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Video- Patient stories20 Sept 2026
The twelve steps to my front door – Lou's NET story
Lou was tramping New Zealand's toughest Great Walks in March. By April, twelve steps to her front door were a struggle. A 15 cm pancreatic NET, a second tumour on her kidney, and the symptoms she had spent years putting down to menopause.
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VideoLiving with NETs14 Sept 2026Managing anxiety – Rebecca Osborne
Practical ways to manage the anxiety that comes with a neuroendocrine cancer diagnosis.
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VideoUnderstanding NET cancer14 Sept 2026Merkel Cell Carcinoma – Ben Lawrence
Merkel Cell Carcinoma, a rare neuroendocrine cancer of the skin, explained for patients and whānau.
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VideoUnderstanding NET cancer14 Sept 2026SIRT – Dr Sofiullah Abubakar and Dr Michael Sunderland
A Zoom session on selective internal radiation therapy (SIRT), for anyone who could not join on the night.
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VideoUnderstanding NET cancer14 Sept 2026Understanding neuroendocrine care in New Zealand – Ben Lawrence
How neuroendocrine cancer care is organised in New Zealand, and what that means for the people in it.
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Research8 Sept 2026Current research on hereditary phaeochromocytoma and paraganglioma (PPGL)
A University of Auckland team is working on earlier detection of hereditary PPGL and on new therapies for SDHB-mutated tumours – the gene mutation most often found in New Zealand patients, and more often in Māori.
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BookletUnderstanding NET cancer3 Aug 2026Patient Guide
This booklet has been developed to provide information about neuroendocrine tumours (NETs) for patients and their families.
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Research22 Jul 2026Current research on MEN1
New Zealand researchers led by Dr Ana Ramachandran are uncovering how different MENIN isoforms help or hinder tumour development in MEN1 – the first in a growing strand of NET research on the site.
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Understanding NET cancer22 Jul 2026MEN1 syndrome (Multiple Endocrine Neoplasia type 1)
MEN1 is a rare inherited condition that causes tumours in the endocrine glands – the parathyroids, pituitary and pancreas. What it is, what causes it, and how it is diagnosed.
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VideoUnderstanding NET cancer21 Jul 2026Neuroendocrine carcinomas – Dr John Mak
A recorded education session with Dr John Mak on neuroendocrine carcinomas (NECs) – aggressive, fast-growing cancers that behave quite differently from the NETs we usually focus on.
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ToolLiving with NETs20 Mar 2026Transport Assistance
Help with travel and accommodation costs for NET treatment in Aotearoa – Te Whatu Ora's National Travel Assistance scheme, NECNZ hardship support, and how to apply.
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ToolLiving with NETs20 Mar 2026We want patients to focus on their cancer treatment instead of worrying about day-to-day costs.
Neuroendocrine Cancer NZ offers a hardship fund to provide a small amount of financial support for patients in the greatest need.
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ToolLiving with NETs20 Mar 2026WINZ Financial Support
Work and Income’s Special Needs Grant can help cancer patients cover essential or emergency costs they can’t afford.
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ToolLiving with NETs20 Mar 2026Psychological support
Mental-health support for people living with neuroendocrine cancer – options across Aotearoa, including free helplines, counselling, and peer support.
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Understanding NET cancer20 Mar 2026Types of scans for NET Cancers
There are various types of scans that may or may not be suitable for your type of NETs. Here is a summary of some scans you might encounter.
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Understanding NET cancer20 Mar 2026Grades of Neuroendocrine (NET) Cancers
What G1, G2 and G3 mean for a neuroendocrine cancer diagnosis – plain-language explanation of grade, Ki-67, and how they shape treatment options.
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Understanding NET cancer20 Mar 2026Types of Neuroendocrine Tumours
Neuroendocrine Tumours (NETs) is an umbrella name for a number of different types of tumours, which can arise in different areas of the body. It can be…
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VideoProgrammes & events16 Mar 2026Information Video Library
This page hosts a series of recorded information sessions from our past education days and Zoom-In sessions
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BookletUnderstanding NET cancer16 Mar 2026PRRT patient guide
Patient guide to peptide receptor radionuclide therapy (PRRT) for NETs.
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