Information you can trust.

Honouring a legacy: Malcolm Legget MNZM

Associate Professor Dr Malcolm Legget was awarded the MNZM for services to neuroendocrine cancer care in New Zealand.

MIBG Therapy for NETs – Dr Rachelle Steyn

A recorded Zoom-In session with Dr Rachelle Steyn on MIBG therapy for neuroendocrine tumours.

Targeted Alpha Therapies and NETs – Dr Andrew Henderson

A recorded Zoom-In session with Dr Andrew Henderson on targeted alpha therapies for neuroendocrine tumours.

Waikato clinicians publish rare renal NET case in international oncology journal

A Waikato Hospital and University of Auckland team co-authored a 2025 case report on a renal neuroendocrine tumour causing Cushing's syndrome, published in Case Reports in Oncology.

Gallium-68 Dotatate PET-CT scans now accessible onboard Mobile Imaging

Mobile Health Group and Mercy Radiology have rolled out Gallium-68 Dotatate PET-CT scans on a mobile imaging unit, bringing advanced NET diagnostics closer to home.

Radiology in NETs – Dr Jane Reeve

A recorded Zoom-In session with Dr Jane Reeve on imaging and radiology for neuroendocrine tumours.

Cabozantinib approved by the FDA for previously treated advanced NETs

The CABINET trial led the FDA to approve cabozantinib in March 2025 for adults and adolescents with previously treated advanced pancreatic and extra-pancreatic NETs.

Lanreotide now funded in New Zealand for neuroendocrine tumours

From 1 March 2025 Pharmac funds lanreotide (Mytolac) for NETs and related conditions, giving Kiwis a second somatostatin analogue option.

Tour of New Zealand riders raise over $18k for NECNZ

Cyclists on the 2025 Tour of New Zealand raised more than $18,000 for Neuroendocrine Cancer NZ.

Let's NET Together - NET Cancer Day

Sunday lunch? BBQ, picnic or pot luck? Let's NET Together and spread awareness about neuroendocrine Cancer on NET Cancer Day.

Let's NET Together invitation template

Editable invitation template for hosting your own Let's NET Together gathering on NET Cancer Day.

Let's NET Together koha card

Printable koha (donation) card for guests at your Let's NET Together event on NET Cancer Day.

Multiple Endocrine Neoplasia Type 1

NECNZ founder and former CEO shares her NETs story

15 years since diagnosis - Dave's NET Story (part 2)

Dave's NET story, part 2 – reflections fifteen years on from diagnosis, on living well with neuroendocrine cancer.

NETTER-2 supports PRRT as a first-line option in advanced GEP-NETs

The Phase 3 NETTER-2 trial showed Lutathera plus octreotide nearly tripled progression-free survival when used as first-line therapy in grade 2/3 GEP-NETs.

In memory of Associate Professor Dr Malcolm Legget

Neuroendocrine Cancer New Zealand mourns the passing of Associate Professor Dr Malcolm Legget, a tireless advocate for NET patients.

Paragangliomas and Pheochromocytomas - July 2024

Helping your GP help you: a free NET education resource

NETs are uncommon, so most GPs will never have managed a patient with one. There's a free RNZCGP-endorsed CME course you can ask them to take.

Talking to your NET healthcare team: practical tips

Medical appointments can be stressful. A few simple habits – bring someone, take notes, write your questions down – make every visit go further.

Watch and wait: when 'doing nothing' is the right plan

For many slow-growing NETs, active monitoring is the recommended approach. Here's why it can feel hard, and how to manage the uncertainty.

When NET cancers run in families: inherited syndromes

Most neuroendocrine cancers aren't inherited, but a small number are linked to hereditary syndromes like MEN1, MEN2 and VHL. Here's what to know.

Adenocarcinoma with unknown primary - Dave's NET story (part 1)

Dave's NET story, part 1 – how a diagnosis of adenocarcinoma with unknown primary led him to a neuroendocrine tumour answer.

Understanding Neuroendocrine (NET) Cancers

Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

What's in a Date? Bryan's NET story

Bryan documents his NETs journey from an unexpected diagnosis