Knowledge Hub
Information you can trust.
Free, evidence-based resources for patients, families and health professionals navigating neuroendocrine cancer in Aotearoa New Zealand. Written in plain language, reviewed by clinicians.
52 resources
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Understanding NET cancer1 Jul 2026SCAN 2025 – NET patient survey (New Zealand)
The New Zealand reading of the global SCAN 2025 survey of neuroendocrine cancer patients and clinicians – how our care compares with the world.
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News1 Jul 2026SCAN 2025: New Zealand leads on access, but patients still wait
New Zealanders with NETs rarely pay for treatment and have world-leading access to PRRT – but 59% report delays, and only 37% have heard of clinical trials. The SCAN 2025 findings, in full.
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Resources for HCPsGP Education
Earn RNZCGP CPD points – a free RNZCGP-endorsed online course on identifying and managing neuroendocrine cancer in general practice.
Read- Patient stories20 Sept 2026
The twelve steps to my front door – Lou's NET story
Lou was tramping New Zealand's toughest Great Walks in March. By April, twelve steps to her front door were a struggle. A 15 cm pancreatic NET, a second tumour on her kidney, and the symptoms she had spent years putting down to menopause.
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Research8 Sept 2026Current research on hereditary phaeochromocytoma and paraganglioma (PPGL)
A University of Auckland team is working on earlier detection of hereditary PPGL and on new therapies for SDHB-mutated tumours – the gene mutation most often found in New Zealand patients, and more often in Māori.
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Research22 Jul 2026Current research on MEN1
New Zealand researchers led by Dr Ana Ramachandran are uncovering how different MENIN isoforms help or hinder tumour development in MEN1 – the first in a growing strand of NET research on the site.
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Understanding NET cancer22 Jul 2026MEN1 syndrome (Multiple Endocrine Neoplasia type 1)
MEN1 is a rare inherited condition that causes tumours in the endocrine glands – the parathyroids, pituitary and pancreas. What it is, what causes it, and how it is diagnosed.
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Understanding NET cancer20 Mar 2026Types of scans for NET Cancers
There are various types of scans that may or may not be suitable for your type of NETs. Here is a summary of some scans you might encounter.
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Understanding NET cancer20 Mar 2026Grades of Neuroendocrine (NET) Cancers
What G1, G2 and G3 mean for a neuroendocrine cancer diagnosis – plain-language explanation of grade, Ki-67, and how they shape treatment options.
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Understanding NET cancer20 Mar 2026Types of Neuroendocrine Tumours
Neuroendocrine Tumours (NETs) is an umbrella name for a number of different types of tumours, which can arise in different areas of the body. It can be…
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Understanding NET cancer16 Mar 2026Treatments for NETs
Treatments for neuroendocrine cancers vary from person to person and may be one or more of the options listed below.
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Resources for HCPs16 Mar 2026NET Nurse Education Workshops
Supporting nurse participants to understand NETs treatments, management and latest developments in research.
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Resources for HCPs16 Mar 2026In-Service Training
Custom training for nurses – we'll work with you to design a session tailored to your team's NETs care needs.
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Understanding NET cancer12 Mar 2026A second PRRT in the FDA pipeline: 177Lu-edotreotide decision due August 2026
The FDA is expected to decide on ITM-11 (177Lu-edotreotide) for GEP-NETs by 28 August 2026, based on the Phase 3 COMPETE trial results.
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Living with NETs11 Mar 2026Nutrition for NETs
Focusing on diet and healthy eating is important for people living with NETs
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Living with NETs11 Mar 2026Identifying what matters to you
Practical guide to advance care planning – conversations and documents that record what matters most to you and your whānau.
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Programmes & events11 Mar 2026Neuroendocrine Cancer New Zealand is dedicated to providing ongoing patient education.
Our monthly Zoom-In sessions with guest experts cover a vast array of topics of interest to neuroendocrine cancer patients, carers and healthcare…
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Living with NETs28 Jan 2026Living with NETS - Online
Living with NETs is a free online education programme designed for patients and support people navigating life with neuroendocrine tumors, whether you are…
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Understanding NET cancer20 Jan 2026Early signals from alpha-emitter PRRT in SSTR2-positive NETs
A first-in-human trial of [212Pb]VMT-α-NET, a targeted alpha-particle therapy for SSTR2-positive NETs, has reported early activity at ASCO GI 2026.
Read- Understanding NET cancer20 Jan 2026
Understanding Neuroendocrine
Neuroendocrine tumours (NETs) is the umbrella term for a group of unusual, often slow-growing cancers.
Read - Programmes & events19 Jan 2026
Annual Patient Education Day
Our annual Patient Education Day is designed specifically for people living with Neuroendocrine Cancer (NETs), as well as their whānau, friends, and…
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Programmes & events19 Jan 2026Peer Support Catch-Ups
We connect people living with neuroendocrine cancer through local and online peer-support catch-ups, creating a welcoming space to share experiences,…
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News2 Jun 2025Honouring a legacy: Malcolm Legget MNZM
Associate Professor Dr Malcolm Legget was awarded the MNZM for services to neuroendocrine cancer care in New Zealand.
Read- News15 Apr 2025
Waikato clinicians publish rare renal NET case in international oncology journal
A Waikato Hospital and University of Auckland team co-authored a 2025 case report on a renal neuroendocrine tumour causing Cushing's syndrome, published in Case Reports in Oncology.
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