Knowledge Hub
Knowledge Hub
Free, evidence-based resources for patients, families and health professionals navigating neuroendocrine cancer in Aotearoa New Zealand. Written in plain language, reviewed by clinicians.
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ToolNutrition guidance for managing unintended weight gain with NETs.
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ToolNutrition strategies for managing unintended weight loss with NETs.
Practical guide to advance care planning – conversations and documents that record what matters most to you and your whānau.
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Our monthly Zoom-In sessions with guest experts cover a vast array of topics of interest to neuroendocrine cancer patients, carers and healthcare…
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Living with NETs is a free online education programme designed for patients and support people navigating life with neuroendocrine tumors, whether you are…
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A first-in-human trial of [212Pb]VMT-α-NET, a targeted alpha-particle therapy for SSTR2-positive NETs, has reported early activity at ASCO GI 2026.
ReadNeuroendocrine tumours (NETs) is the umbrella term for a group of unusual, often slow-growing cancers.
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Our annual Patient Education Day is designed specifically for people living with Neuroendocrine Cancer (NETs), as well as their whānau, friends, and…
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We connect people living with neuroendocrine cancer through local and online peer-support catch-ups, creating a welcoming space to share experiences,…
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Associate Professor Dr Malcolm Legget was awarded the MNZM for services to neuroendocrine cancer care in New Zealand.
ReadA Waikato Hospital and University of Auckland team co-authored a 2025 case report on a renal neuroendocrine tumour causing Cushing's syndrome, published in Case Reports in Oncology.
ReadMobile Health Group and Mercy Radiology have rolled out Gallium-68 Dotatate PET-CT scans on a mobile imaging unit, bringing advanced NET diagnostics closer to home.
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The CABINET trial led the FDA to approve cabozantinib in March 2025 for adults and adolescents with previously treated advanced pancreatic and extra-pancreatic NETs.
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From 1 March 2025 Pharmac funds lanreotide (Mytolac) for NETs and related conditions, giving Kiwis a second somatostatin analogue option.
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ExternalCyclists on the 2025 Tour of New Zealand raised more than $18,000 for Neuroendocrine Cancer NZ.
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Sunday lunch? BBQ, picnic or pot luck? Let's NET Together and spread awareness about neuroendocrine Cancer on NET Cancer Day.
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ToolEditable invitation template for hosting your own Let's NET Together gathering on NET Cancer Day.
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ToolPrintable koha (donation) card for guests at your Let's NET Together event on NET Cancer Day.
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NECNZ founder and former CEO shares her NETs story
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Dave's NET story, part 2 – reflections fifteen years on from diagnosis, on living well with neuroendocrine cancer.
ReadThe Phase 3 NETTER-2 trial showed Lutathera plus octreotide nearly tripled progression-free survival when used as first-line therapy in grade 2/3 GEP-NETs.
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Neuroendocrine Cancer New Zealand mourns the passing of Associate Professor Dr Malcolm Legget, a tireless advocate for NET patients.
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VideoNETs are uncommon, so most GPs will never have managed a patient with one. There's a free RNZCGP-endorsed CME course you can ask them to take.
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