Knowledge Hub
Knowledge Hub
Free, evidence-based resources for patients, families and health professionals navigating neuroendocrine cancer in Aotearoa New Zealand. Written in plain language, reviewed by clinicians.
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BookletPatient guide to peptide receptor radionuclide therapy (PRRT) for NETs.
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Treatments for neuroendocrine cancers vary from person to person and may be one or more of the options listed below.
ToolPlain-language definitions of common neuroendocrine tumour (NET) terms – for patients, whānau, and care partners. Updated as new treatments and tests come into NZ practice.
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Supporting nurse participants to understand NETs treatments, management and latest developments in research.
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Custom training for nurses – we'll work with you to design a session tailored to your team's NETs care needs.
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The FDA is expected to decide on ITM-11 (177Lu-edotreotide) for GEP-NETs by 28 August 2026, based on the Phase 3 COMPETE trial results.
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ToolPractical nutrition tips for managing carcinoid syndrome – from the NECNZ Nutrition for NETs guide.
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ToolNutrition strategies for managing constipation when living with neuroendocrine cancer.
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ToolToolkit of practical food, fluid and lifestyle steps for managing diarrhoea with NETs.
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ToolGeneral eating-well guidance for people living with neuroendocrine cancer.
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ToolPrintable diary for tracking food, fluid and symptoms – useful to share with your dietitian or NET specialist.
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ToolNutrition tips for easing nausea and vomiting symptoms when living with NETs.
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Focusing on diet and healthy eating is important for people living with NETs
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ToolFood and drink advice for the lead-up to a urinary 5-HIAA test.
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ToolNutrition guidance for managing unintended weight gain with NETs.
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ToolNutrition strategies for managing unintended weight loss with NETs.
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Practical guide to advance care planning – conversations and documents that record what matters most to you and your whānau.
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Our monthly Zoom-In sessions with guest experts cover a vast array of topics of interest to neuroendocrine cancer patients, carers and healthcare…
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Living with NETs is a free online education programme designed for patients and support people navigating life with neuroendocrine tumors, whether you are…
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A first-in-human trial of [212Pb]VMT-α-NET, a targeted alpha-particle therapy for SSTR2-positive NETs, has reported early activity at ASCO GI 2026.
ReadNeuroendocrine tumours (NETs) is the umbrella term for a group of unusual, often slow-growing cancers.
ReadOur annual Patient Education Day is designed specifically for people living with Neuroendocrine Cancer (NETs), as well as their whānau, friends, and…
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We connect people living with neuroendocrine cancer through local and online peer-support catch-ups, creating a welcoming space to share experiences,…
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VideoA recorded Zoom-In session with Professor Jonathan Koea on surgery for neuroendocrine tumours.
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