Information you can trust.

Karen's NET Story

Small intestinal NETs in the family - Jenny's NET story

Jenny's story – small intestinal NETs running in her family, and the path to genetic testing and ongoing care.

NET Resources

Revisit past presentations from NET Cancer specialists at Unicorn Foundation NZ's NET Cancer Education Days.

Malignant carcinoid tumour - Lynette's NET story

Lynette shares her experience of a malignant carcinoid tumour – diagnosis, treatment, and life beyond it.

Honouring Dr Malcolm Legget

Pancreatic NETs - Chris's NET

Chris's NET cancer experience has created more upsides to his life than downsides

Merkel Cell Carcinoma - Peter's

Peter self-funded a treatment that we're now campaigning for

Pulmonary neuroendocrine carcinoma - Suzanne's story

Suzanne shares her experience of pulmonary neuroendocrine carcinoma – diagnosis, treatment, and what she would tell anyone newly diagnosed.

About PRRT - Dr Rachelle Steyn

Pancreatic NET with liver secondaries - Malcolm's NET story

Malcolm's story – living with a pancreatic neuroendocrine tumour and liver secondaries, told in his own words.

Carcinoid Heart Disease & Surgery - Dr Boris Lowe July 2022

Genetics and NETS - Dr Veronica Boyle

Radiology in Neuroendocrine Tumours

Can we improve monitoring of people with NETs?

Unicorn Foundation NZ founder and board member steps down

After six years as CEO, Siobhan Conroy stepped down from the Unicorn Foundation NZ board, leaving behind a transformed landscape for NET patients.

Dietary Management of Diarrhoea in NETs - Olivia Cochrane

A NET surgeon's perspective - Dr Michael Chu

Understanding NETs - Avril Hull (ADHB, UFNZ)

Diarrhoea & NETs - Dr Veronica Boyle, ADHB

Our NET journey - Jo and Ian, August 2021

About PRRT - Presented by Avril Hull (ADHB)

Octreotide brand switch

Patients on octreotide were switched to a new funded brand in late 2021. NECNZ asked nurses and patients to help monitor any side effects.

PRRT in NZ

Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

PRRT officially launched in NZ

Minister of Health Hon Andrew Little officially launched the new PRRT service for New Zealand neuroendocrine cancer patients in July 2021.