Knowledge Hub
Information you can trust.
Free, evidence-based resources for patients, families and health professionals navigating neuroendocrine cancer in Aotearoa New Zealand. Written in plain language, reviewed by clinicians.
9 resources
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News1 Jul 2026SCAN 2025: New Zealand leads on access, but patients still wait
New Zealanders with NETs rarely pay for treatment and have world-leading access to PRRT – but 59% report delays, and only 37% have heard of clinical trials. The SCAN 2025 findings, in full.
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News2 Jun 2025Honouring a legacy: Malcolm Legget MNZM
Associate Professor Dr Malcolm Legget was awarded the MNZM for services to neuroendocrine cancer care in New Zealand.
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News15 Apr 2025Waikato clinicians publish rare renal NET case in international oncology journal
A Waikato Hospital and University of Auckland team co-authored a 2025 case report on a renal neuroendocrine tumour causing Cushing's syndrome, published in Case Reports in Oncology.
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News12 Apr 2025Gallium-68 Dotatate PET-CT scans now accessible onboard Mobile Imaging
Mobile Health Group and Mercy Radiology have rolled out Gallium-68 Dotatate PET-CT scans on a mobile imaging unit, bringing advanced NET diagnostics closer to home.
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News26 Feb 2025Lanreotide now funded in New Zealand for neuroendocrine tumours
From 1 March 2025 Pharmac funds lanreotide (Mytolac) for NETs and related conditions, giving Kiwis a second somatostatin analogue option.
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News15 Aug 2024In memory of Associate Professor Dr Malcolm Legget
Neuroendocrine Cancer New Zealand mourns the passing of Associate Professor Dr Malcolm Legget, a tireless advocate for NET patients.
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News30 Sept 2021Unicorn Foundation NZ founder and board member steps down
After six years as CEO, Siobhan Conroy stepped down from the Unicorn Foundation NZ board, leaving behind a transformed landscape for NET patients.
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Octreotide brand switch
Patients on octreotide were switched to a new funded brand in late 2021. NECNZ asked nurses and patients to help monitor any side effects.
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News15 Jul 2021PRRT officially launched in NZ
Minister of Health Hon Andrew Little officially launched the new PRRT service for New Zealand neuroendocrine cancer patients in July 2021.
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