Information you can trust.

Lanreotide now funded in New Zealand for neuroendocrine tumours

From 1 March 2025 Pharmac funds lanreotide (Mytolac) for NETs and related conditions, giving Kiwis a second somatostatin analogue option.

Let's NET Together - NET Cancer Day

Sunday lunch? BBQ, picnic or pot luck? Let's NET Together and spread awareness about neuroendocrine Cancer on NET Cancer Day.

Multiple Endocrine Neoplasia Type

NECNZ founder and former CEO shares her NETs story

15 years since diagnosis - Dave's NET Story (part 2)

Dave's NET story, part 2 – reflections fifteen years on from diagnosis, on living well with neuroendocrine cancer.

NETTER-2 supports PRRT as a first-line option in advanced GEP-NETs

The Phase 3 NETTER-2 trial showed Lutathera plus octreotide nearly tripled progression-free survival when used as first-line therapy in grade 2/3 GEP-NETs.

In memory of Associate Professor Dr Malcolm Legget

Neuroendocrine Cancer New Zealand mourns the passing of Associate Professor Dr Malcolm Legget, a tireless advocate for NET patients.

Helping your GP help you: a free NET education resource

NETs are uncommon, so most GPs will never have managed a patient with one. There's a free RNZCGP-endorsed CME course you can ask them to take.

Talking to your NET healthcare team: practical tips

Medical appointments can be stressful. A few simple habits – bring someone, take notes, write your questions down – make every visit go further.

Watch and wait: when 'doing nothing' is the right plan

For many slow-growing NETs, active monitoring is the recommended approach. Here's why it can feel hard, and how to manage the uncertainty.

When NET cancers run in families: inherited syndromes

Most neuroendocrine cancers aren't inherited, but a small number are linked to hereditary syndromes like MEN1, MEN2 and VHL. Here's what to know.

Adenocarcinoma with unknown primary - Dave's NET story (part 1)

Dave's NET story, part 1 – how a diagnosis of adenocarcinoma with unknown primary led him to a neuroendocrine tumour answer.

Understanding Neuroendocrine (NET) Cancers

Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

What's in a Date? Bryan's NET story

Bryan documents his NETs journey from an unexpected diagnosis

Karen's NET Story

Small intestinal NETs in the family - Jenny's NET story

Jenny's story – small intestinal NETs running in her family, and the path to genetic testing and ongoing care.

NET Resources

Revisit past presentations from NET Cancer specialists at Unicorn Foundation NZ's NET Cancer Education Days.

Malignant carcinoid tumour - Lynette's NET story

Lynette shares her experience of a malignant carcinoid tumour – diagnosis, treatment, and life beyond it.

Honouring Dr Malcolm Legget

Pancreatic NETs - Chris's NET

Chris's NET cancer experience has created more upsides to his life than downsides

Merkel Cell Carcinoma - Peter's

Peter self-funded a treatment that we're now campaigning for

Pulmonary neuroendocrine carcinoma - Suzanne's story

Suzanne shares her experience of pulmonary neuroendocrine carcinoma – diagnosis, treatment, and what she would tell anyone newly diagnosed.

Pancreatic NET with liver secondaries - Malcolm's NET story

Malcolm's story – living with a pancreatic neuroendocrine tumour and liver secondaries, told in his own words.