Information you can trust.

Helping your GP help you: a free NET education resource

NETs are uncommon, so most GPs will never have managed a patient with one. There's a free RNZCGP-endorsed CME course you can ask them to take.

Talking to your NET healthcare team: practical tips

Medical appointments can be stressful. A few simple habits – bring someone, take notes, write your questions down – make every visit go further.

Watch and wait: when 'doing nothing' is the right plan

For many slow-growing NETs, active monitoring is the recommended approach. Here's why it can feel hard, and how to manage the uncertainty.

When NET cancers run in families: inherited syndromes

Most neuroendocrine cancers aren't inherited, but a small number are linked to hereditary syndromes like MEN1, MEN2 and VHL. Here's what to know.

Adenocarcinoma with unknown primary - Dave's NET story (part 1)

Dave's NET story, part 1 – how a diagnosis of adenocarcinoma with unknown primary led him to a neuroendocrine tumour answer.

Understanding Neuroendocrine (NET) Cancers

Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

What's in a Date? Bryan's NET story

Bryan documents his NETs journey from an unexpected diagnosis

Karen's NET Story

Small intestinal NETs in the family - Jenny's NET story

Jenny's story – small intestinal NETs running in her family, and the path to genetic testing and ongoing care.

Corporate Partners

Our corporate partners help fund the patient information, peer support, and advocacy work we do for the NET community in Aotearoa.

Fundraise for NECNZ

Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

NET Resources

Revisit past presentations from NET Cancer specialists at Unicorn Foundation NZ's NET Cancer Education Days.

Malignant carcinoid tumour - Lynette's NET story

Lynette shares her experience of a malignant carcinoid tumour – diagnosis, treatment, and life beyond it.

Honouring Dr Malcolm Legget

Pancreatic NETs - Chris's NET

Chris's NET cancer experience has created more upsides to his life than downsides

Merkel Cell Carcinoma - Peter's

Peter self-funded a treatment that we're now campaigning for

Pulmonary neuroendocrine carcinoma - Suzanne's story

Suzanne shares her experience of pulmonary neuroendocrine carcinoma – diagnosis, treatment, and what she would tell anyone newly diagnosed.

Pancreatic NET with liver secondaries - Malcolm's NET story

Malcolm's story – living with a pancreatic neuroendocrine tumour and liver secondaries, told in his own words.

Unicorn Foundation NZ founder and board member steps down

After six years as CEO, Siobhan Conroy stepped down from the Unicorn Foundation NZ board, leaving behind a transformed landscape for NET patients.

Octreotide brand switch

Patients on octreotide were switched to a new funded brand in late 2021. NECNZ asked nurses and patients to help monitor any side effects.

PRRT in NZ

Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

PRRT officially launched in NZ

Minister of Health Hon Andrew Little officially launched the new PRRT service for New Zealand neuroendocrine cancer patients in July 2021.